Author Topic: Five-year-old ill child taken from hospital by parents.  (Read 21635 times)

0 Members and 1 Guest are viewing this topic.

Offline carlymichelle

Re: Five-year-old ill child taken from hospital by parents.
« Reply #75 on: September 07, 2014, 01:36:10 PM »
Davel also appears to have a problem with the King family taking 5 year old Ashya out of hospital in order to get specialist treatment in another country.  Puzzling??

yep he is getting treatment in italy i think .where was  daves  outrage at  the parents being stopped seeing their much loved little boy davel is weird imo

Offline Mr Gray

Re: Five-year-old ill child taken from hospital by parents.
« Reply #76 on: September 07, 2014, 01:43:14 PM »
Davel also appears to have a problem with the King family taking 5 year old Ashya out of hospital in order to get specialist treatment in another country.  Puzzling??

like most others angelo you have taken a very simplistic approach to the case...what I have questioned is...is Ashya Going to get the best medical treatment for his condition...you seem to think you are an expert on this topic..you are not...his consultant in Southampton believes traditional radiotherapy would be better for him...he may well be right..

Offline Mr Gray

Re: Five-year-old ill child taken from hospital by parents.
« Reply #77 on: September 07, 2014, 02:12:55 PM »
Davel also appears to have a problem with the King family taking 5 year old Ashya out of hospital in order to get specialist treatment in another country.  Puzzling??

it isn't puzzling when you actually have an understanding of how these things work...which you don't...quote from the guardian..

But doctors from Southampton, speaking for the first time, told the Guardian that Ashya would not get the extra benefit from the treatment in Prague that his parents wanted, because most of his brain and spine will still have to be irradiated.

They also said that an application to a specialist board for NHS funding for proton beam therapy for Ashya was turned down earlier this week. The NHS funds children under certain circumstances to get proton beam therapy abroad and Southampton has often sent such patients for the treatment, but an application for Ashya to have it was rejected because it offers no benefit over conventional radiotherapy. The side effects will be the same
.

Offline John

Re: Five-year-old ill child taken from hospital by parents.
« Reply #78 on: September 07, 2014, 02:39:30 PM »
it isn't puzzling when you actually have an understanding of how these things work...which you don't...quote from the guardian..

But doctors from Southampton, speaking for the first time, told the Guardian that Ashya would not get the extra benefit from the treatment in Prague that his parents wanted, because most of his brain and spine will still have to be irradiated.

They also said that an application to a specialist board for NHS funding for proton beam therapy for Ashya was turned down earlier this week. The NHS funds children under certain circumstances to get proton beam therapy abroad and Southampton has often sent such patients for the treatment, but an application for Ashya to have it was rejected because it offers no benefit over conventional radiotherapy. The side effects will be the same
.

Ashya would have had no chance at all if his parents hadn't taken him out of Southampton General.  Now at least he has a fighting chance with the specialist proton therapy denied to him by the consultants in Southampton.

The evidence speaks for itself, we have heard from several parents since Asha's case hit the headlines whose child succumbed to mass radiation treatment having also been denied proton therapy by Southampton.  Proton therapy can be targeted on the cancerous cells in the brain and avoid the undamaged ones.  Limited mass radiation can be applied at any time thereafter.  No matter what way one looks at this, the specialised treatment wins hands down every time.

« Last Edit: September 07, 2014, 02:46:10 PM by John »
A malicious prosecution for a crime which never existed. An exposé of egregious malfeasance by public officials.
Indeed, the truth never changes with the passage of time.

Offline Mr Gray

Re: Five-year-old ill child taken from hospital by parents.
« Reply #79 on: September 07, 2014, 04:32:15 PM »
Ashya would have had no chance at all if his parents hadn't taken him out of Southampton General.  Now at least he has a fighting chance with the specialist proton therapy denied to him by the consultants in Southampton.

The evidence speaks for itself, we have heard from several parents since Asha's case hit the headlines whose child succumbed to mass radiation treatment having also been denied proton therapy by Southampton.  Proton therapy can be targeted on the cancerous cells in the brain and avoid the undamaged ones.  Limited mass radiation can be applied at any time thereafter.  No matter what way one looks at this, the specialised treatment wins hands down every time.

What are you basing your opinons on John...a couple of articles in a newspaper...according to the consultant Southampton have sent several children for proton therapy abroad but it was not considered beneficial for Ashya..but what do the doctors know compared to what you have picked up on the net in the last couple of days

Offline John

Re: Five-year-old ill child taken from hospital by parents.
« Reply #80 on: September 08, 2014, 12:23:38 PM »
What are you basing your opinons on John...a couple of articles in a newspaper...according to the consultant Southampton have sent several children for proton therapy abroad but it was not considered beneficial for Ashya..but what do the doctors know compared to what you have picked up on the net in the last couple of days

It isn't an opinion but fact.  Mass radiation treatment irradiates the entire brain killing both good and cancerous cells.  Ashya would have lost brain function and might even have died from such therapy.  Proton Therapy on the other hand combined with minimal mass radiation treatment targets the damaged cells and avoids damaging the healthy ones.  Which part of this don't you understand Dave?
« Last Edit: October 19, 2014, 03:18:15 PM by John »
A malicious prosecution for a crime which never existed. An exposé of egregious malfeasance by public officials.
Indeed, the truth never changes with the passage of time.

Offline John

Re: Five-year-old ill child taken from hospital by parents.
« Reply #81 on: September 08, 2014, 02:28:33 PM »
Ashya King arrives at Prague hospital

Ashya King has arrived at a hospital in Prague after being given permission to travel. The five-year-old left a hospital in Malaga this morning, where he has been treated since his parents were arrested more than a week ago. Ashya is expected to undergo proton therapy treatment at a separate clinic.

The clinic where Ashya will receive the specalist Proton Therapy treatment has confirmed that his father will later today visit the facility in Prague.  A spokesman for the clinic said, "Mr King will be shown the facility; he will be introduced to the process of treatment and to a team of the attending physicians and physicists."

It must be remembered that it was public opinion and generosity on sites such as facebook and twitter that have brought this about...people power at its finest!
« Last Edit: September 08, 2014, 02:36:02 PM by John »
A malicious prosecution for a crime which never existed. An exposé of egregious malfeasance by public officials.
Indeed, the truth never changes with the passage of time.

Offline sadie

Re: Five-year-old ill child taken from hospital by parents.
« Reply #82 on: September 09, 2014, 12:34:25 AM »
It isn't an opinion but fact.  Mass radiation treatment irradiates the entire brain killing both good and cancerous cells.  Ashya would have lost brain function and might even have died from such therapy.  Proton Therapy on the other hand combined with minimal mass radiation treatment targets the damaged cells and avoids damaging the healthy ones.  Which part of this don't you understand Dave?
My little boy had targetted radiation John.  He had a head protecting helmet made specially for him.  This covered his whole brain to keep unwanted radiation away except for the tumour.  That was narrow beam targetted directly by a directional access point thru the helmet.  The same with his spine, an access point throught the top of his helmet was targetted at the tunour on the top of his spine, but also the radiation was designed to pass straight down the spine to irradiate the whole spine.

We were lucky that we had the top expert in the Midlands, some said in the country.  Important people used to fly in from abroad to be treated by him ... but the bottom line was that there was only a 25% success rate ... and I wonder if they stretched that to give us hope.

Of course all this was almost 40 years ago... and things will have progressed hopefully.  Unhappily my understanding is that things have only improved in a very limited way with brain tumours. 

I wonder, if this proton therapy is targetted like the radiation treatment my son received, cos if it is, maybe Atsha will suffer the same rather random Hit and Miss that happened with my little boys treatment.  Despite every effort being made to hit the right spot, I wonder if it only partailly achieved its target.


Surely with modern techniques they can make sure the treatment is precisely targetted and achieving its aim?  without that, I fear the success rate will be little higher than 40 years ago @25%.   


However, my understanding is that if the proton treatment is successful in killing the tumour, then Ayshas quality of life will be better than my boys life might have been.  We knew that amongst other things, had he survived, he would have been sterile.  No joke that.

Proton Therapy apparantly does not kill the good tissue, but just the tumour.  The old treatment killed everything in its narrow beam of radiation, good and bad.



The world is watching.   I feel sure that Aysha will get the best treatment possible and hope that he and the Medics together can beat the odds.  If they can, after recovery, it seems that he will be able to return to a healthy and full life   


They are all going thru hell atm.    My love goes out to the whole family.   


May Aysha be one of the lucky ones.




I would like to point out that I am not an expert in any way, but have been thru it and have an understanding becos of that.  I am not sure that I would have done what the family did, becos of the risks and delay to the treatment, but they have been lucky [after the appalling treatment of the parents in Spain; that makes me so angry] in that things seem to have fallen in place. 

To be brutally honest, the idea of selling the apartment to raise the money was very loving, but rather ill conceived, because it would have been too late.  Medulla Blastomas are viscious rapid growing tumours.  Thank goodness they are getting on with the treatment agian.


Offline Mr Moderator

Re: Five-year-old ill child taken from hospital by parents.
« Reply #83 on: September 10, 2014, 01:30:05 PM »
Thank you for sharing your experiences with us Sadie.  The Proton Therapy is cutting edge technology and when combined with the very latest scanning techniques can pinpoint cancerous cells and radiate them instantly.  Ashya has a wonderful chance for a full recovery while maintaining brain function thanks to this technology.

Offline John

Re: Five-year-old ill child taken from hospital by parents.
« Reply #84 on: September 10, 2014, 04:49:21 PM »
Thank you for sharing your experiences with us Sadie.  The Proton Therapy is cutting edge technology and when combined with the very latest scanning techniques can pinpoint cancerous cells and radiate them instantly.  Ashya has a wonderful chance for a full recovery while maintaining brain function thanks to this technology.

Ashya is having a week of rest in a private clinic before the treatment proper commences at the Proton Therapy Clinic on Monday.
A malicious prosecution for a crime which never existed. An exposé of egregious malfeasance by public officials.
Indeed, the truth never changes with the passage of time.

Offline Mr Gray

Re: Five-year-old ill child taken from hospital by parents.
« Reply #85 on: September 10, 2014, 08:58:52 PM »
Ashya is having a week of rest in a private clinic before the treatment proper commences at the Proton Therapy Clinic on Monday.

From what I have read Ashya does not need pinpoint radiation but will need fairly large areas of his brain irradiated and this is why proton therapy was deemed to have no benefit.

Offline John

Re: Five-year-old ill child taken from hospital by parents.
« Reply #86 on: September 11, 2014, 02:10:25 AM »
From what I have read Ashya does not need pinpoint radiation but will need fairly large areas of his brain irradiated and this is why proton therapy was deemed to have no benefit.

He will need both Dave but the chemo to a much lesser degree which will leave him with brain function rather than being left in a permanent vegetative state.
A malicious prosecution for a crime which never existed. An exposé of egregious malfeasance by public officials.
Indeed, the truth never changes with the passage of time.

Offline Mr Gray

Re: Five-year-old ill child taken from hospital by parents.
« Reply #87 on: September 11, 2014, 08:03:20 AM »
What the f..k were Hampshire Police thinking about when they issued an arrest warrant, I can't believe the insensitivity of these idiots.  And now we know that Ashya has been taken from the only people he knows and his parents stuck in a f.....g dungeon below Malaga police station.  UNBELIEVABLE!!!

Earlier this week we heard how Rotherham Police effectively let a bunch of paedophiles and rapists off the hook having abused over 1400 children and now these f.....g idiots in Hampshire do this to loving parents. What the hell is this country coming to?

Ashya was in serious danger as he had no gag reflex and needed to be in hospital..the EAW was the best way to find him quickly

Offline Mr Gray

Re: Five-year-old ill child taken from hospital by parents.
« Reply #88 on: September 11, 2014, 08:05:50 AM »
He will need both Dave but the chemo to a much lesser degree which will leave him with brain function rather than being left in a permanent vegetative state.

How many children who receive conventional radiation are left in a permanent vegetative state...trey and stick to the facts

Offline John

Re: Five-year-old ill child taken from hospital by parents.
« Reply #89 on: September 15, 2014, 03:40:26 PM »
How many children who receive conventional radiation are left in a permanent vegetative state...trey and stick to the facts

Those are the facts.  Removal of a brain tumour followed by mass radiation treatment such as chemotherapy destroys healthy brain cells as well as cancerous ones. The consequences of this can range from various levels of loss of cognitive ability through to death.

Proton Therapy treatment combined with limited chemotherapy like that which Ashya is having today targets the cancerous cells and greatly reduces the chances of long term brain damage.

Conventional chemotherapy works on the basis that healthy cells will rejuvenate quicker than cancerous cells with the latter eventually dying altogether while the former recover over time.  Anything which avoids unnecessary damage to the brain can only be good news and that is why more and more parents are demanding proton therapy for their children.

If the Ashya King case has done anything, it has opened the eyes of the public as to what is being offered as a 'best care' under the NHS compared to the cutting edge medical expertise which is available elsewhere at a price.

« Last Edit: October 19, 2014, 03:19:12 PM by John »
A malicious prosecution for a crime which never existed. An exposé of egregious malfeasance by public officials.
Indeed, the truth never changes with the passage of time.